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Cystic fibrosis (CF) is the most common, fatal genetic disease affecting young Canadians.Approximately 60% of patients are diagnosed in the first year of life, and 90% by 10 years of age. People are born with cystic fibrosis; it is a genetic disorder. It is estimated that one in every 3,600 children born in Canada has CF. Approximately one in every 25 Canadians carries a defective version of the gene responsible for CF. Treatment programs are tailored to individual needs and depend upon the stage of the disease and which organs are affected. For persons with CF, life includes a daily routine of therapy and periodic visits to a CF clinic. Otherwise, most individuals with cystic fibrosis lead normal lives, for many years, in terms of education, physical activity, and social relationships. Thanks to advances in research and clinical care, growing numbers of children with CF are surviving into adulthood. As yet, there is no known cure for CF, but there is real hope. Comprehensive treatment programs have dramatically extended the lives of persons with CF and many are living into their 20s, 30s and beyond. The pace of CF science suggests that there is good reason to feel optimistic about the future. |
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Kin Organ Donor Awareness Campaign The Kin Organ Donor Awareness Campaign (Kin-ODAC) was established in 2001 at National Convention to improve Kin education on issues of concern and importance to organ donation across Canada, and then to extend that education throughout our communities. It was the dream of Andrew Hatfield, born with a complex congenital heart disease and the first Kin Kid to join the St. John's East Kinsmen Club (his father, Larry, was a life member) that inspired Kin across Canada to get involved with organ donor awareness. Annually, the end of April marks National Organ and Tissue Donor Awareness Week. For Kin members, it is a time to increase awareness among ourselves about the Organ Donor program, to assist in the education of our communities, and to be a contact that the National Organ Donor Program can call upon when they need an inroad to a community where we already exist. This partnership with the Organ Donor Program is in fact an extension of our partnership with the Canadian Cystic Fibrosis Foundation. The network of Kinsmen and Kinettes has made great strides in their efforts against CF over the last 40 years. Kin can extend that power to help those who are awaiting transplants. |
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Kin Canada Bursaries In memory of the Association's founder, Hal Rogers, who passed away in September 1994 at the age of 95, Kin Canada has established the Kin Canada Bursaries, a program of the Hal Rogers Endowment Fund. Its purpose is to promote, encourage and sponsor educational programs and activities. Throughout his life, Hal Rogers believed in the value of education. In his own words, "providing and promoting the finest and most effective education possible for our young people" was a noble endeavour. $1000 bursaries are awarded annually based on financial need, community/volunteer involvement and knowledge of Kin Canada. Applicants to Kin Canada Bursaries must:
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Keep Up With All Our Kin News And Information It's important to stay up to date so keep checking the Kin National Newsroom, District 4 Information, District 4 News and theZone News websites for changes.
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